DeLanee's Story

Five years ago, Becky and Tommy Norris, were blessed to be pregnant with their second child. Shortly thereafter they learned that they were going to be parents to a little girl, but the probability of their daughter living for very long was extremely low. Their daughter was diagnosed with a condition called Dandy-Walker Cyst. The doctors believed that the Norris’ baby would deteriorate and pass away during pregnancy, but much to their surprise DeLanee developed until 28 weeks gestation when she was delivered and lived for three hours. As you can imagine, these 3 hours was precious time that they spent as a family with their daughter taking pictures, bathing, dressing and holding her until she passed away in their arms. Upon DeLanee's passing, the nurses brought the Norris family a box to put their daughter’s belongings in to take home with them. Because DeLanee was born in January the nurses were able to find a leftover Christmas box. That Christmas box became extremely special to the Norris family and they clung to it and the contents inside that held their daughter’s precious belongings as they left the hospital without their baby. It was because of this box that the inspiration for Lanee’s Legacy began. . .

Tuesday, December 15, 2009

What Have You Done For Someone Today?

For those of you that have been checking in on our blog and waiting for an update, we're sorry it has been so long. Ever since our event it has been a bit of a whirlwhind. We have been in the midst of organizing, organizing and more organizing. Not only are we forming our non-profit and working on executive proposals and prospectuses (all terms we are learning about), but we have also been busy doing LOTS of boxes. This, of course, is the part we love! We have made a delivery to Banner Desert Hospital and have even seen our boxes reach as far as Australia and North Dakota.

We have been working on teaming up with an AMAZING group of medical professionals - Phoenix Perinatal Associates. They are specialists in the area of obstetrics and gynecology with advanced training in the management of high-risk pregnancies. I was referred to their office when I first learned of the news with DeLanee and have had 2 babies with their office since then. I have felt so blessed to have been in their care during one of the hardest times of my life as well as the happiest. I cannot say enough good about the level of treament you receive as a patient as well as the compassion they show you as an individual during a difficult time. I am so happy at the interest and support they have shown in sponsoring Lanee's Legacy and appreciate all they've done so far. We recently used their offices to assemble boxes as well as being able to store our supplies. I (and my family) are so happy to not have my living room stacked to the ceiling with boxes!! They currently are storing many boxes that are completed and ready for delivery as well as those that still need completed. Those who are in need of one of our boxes can now go to their offices to pick one up. They will also be happy to receive any donations anyone would like to offer.

We also were recently invited to a Winter Wonderland Festival in Kearny, Arizona that the Copper Basin Chamber of Commerce hosts. During this event they do a luminaria honor walk where those who want can buy luminarias (lighted paper bags) in honor of a lost loved one. Christine Hartin and Nathan Broyles are residents of Kearny and lost a son, Zayvian David Broyles, to fetal hydrops. They were given the opportunity to choose which charity would receive the proceeds from the luminarias. We were so honored that they would select us. We had such a good time participating in their festival and were happy to meet so many awesome people!
Thank you Christine and Nathan!

Their son's luminaria:

To finally get to the point of my post, I am a member of this church and recently during the semi-annual general conference, had the opportunity to listen to the President of our church, Thomas S. Monson, speak about a man named Dr. Jack McConnell. He was 1 of 7 children who lived in a humble home and grew up in the hills of Southwest Virginia. His father was a methodist minister and his mother a homemaker. Every night around the dinner table, his father would go around the table and ask each of his children the question "what have you done for someone today?". This became so engrained in the children that they would look for opportunities to do a good turn for someone else each day. As the children grew their motivation changed to an inner desire to help others.

Dr. McConell came to have a distinguished medical career and acheived wonderful things throughout his life including the development of the tuberculosis tine test, participated in the early development of the polio vaccine, supervised the development of Tylenol, and was instrumental in developing the magnetic resonance imaging procedure, or MRI. But what Dr. McConnell calls his greatest accomplishment is that he created an organization called "Volunteers in Medicine", which gives retired medical personnel a chance to volunteer at free clinics serving the working uninsured. Dr. McConnell made this statement: “In one of those paradoxes of life, I have benefited more from Volunteers in Medicine than my patients have.”

I don't want to compare us to Dr. McConell (we can't all be that great, right?), but what I can relate to is that we often feel this same way in that we benefit far more than any recipient mother of a box. What I have learned is that in one of the darkest times in my life it was helping others that ultimatally helped myself. It was by attempting to look outside of myself to notice someone else and what they may be going through to realize I am not alone.

President Monson reminded us that in Luke 9:24, the Savior taught His disciples, “For whosoever will save his life shall lose it: but whosoever will lose his life for my sake, the same shall save it.”

He also stated:

"I believe the Savior is telling us that unless we lose ourselves in service to others, there is little purpose to our own lives. Those who live only for themselves eventually shrivel up and figuratively lose their lives, while those who lose themselves in service to others grow and flourish—and in effect save their lives."

How true this is! Recently we have had SO many people help our organization to ensure that no mother leaves the hospital empty handed. We appreciate those that have taken time from their lives to help us. It is my hope that anyone who participates in assembling boxes, making donations or providing service in any other way may also experience some of these same feelings that Dr. McConnell was talking about. We certainly thank everyone that has helped us recently in furthering our cause and helping those that need it.

Thursday, November 5, 2009

Making Boxes!

We have been busy trying to get boxes ready to assemble. With everyones kind generosity we have been able to buy most of the stuff to make the boxes, however we are finding out that we are running low on a few items that go inside the boxes. Our goal is to never let a mom leave the hospital empty handed. We have a 160 boxes that we are trying to get completed, but are in need of the following items:

*journals

*indoor disposable cameras w/ a flash

*small packages of kleenex

*ink pens

*mini photo albums

*memorex jewel cases

*hard candy (ie butterscotch disc)



If you would like to donate any of these items please feel free to email anyone on the board. Giftcards to Scrapbooks Etc. and Hobby Lobby are also appreciated.



We feel extremely grateful to all of you who believe in Lanee's Legacy and are willing to help.

Tuesday, October 20, 2009

Pics of our Breakfast and our Winner

We are so excited to share the highlights of our pancake breakfast with you. Amy Lytle donated her time and awesome photography skills and we love the pictures she got back to us. What a great day it was and again want to thank everyone who contributed to making this a success!

Before doing that though we wanted to announce the winner of our necklace and brooch. We used http://www.random.org/ to generate a random number which came up with #1, so, Stephanie, if you will e-mail me with your address I would love to get these in the mail to you.

So. . .here are the highlights from the breakfast:

Do you know that all of these guys had to go and take a food handler's
test to be able to assist our caterer with the food? Thanks guys!
(Chris, Tom, Ian, Josh and Ryan)

Not sure what was so funny here, but I felt like it showed what a good time we all had.
(Suzanne, Rayel, Becky and Kathryn)

These girls ran our greeting/will call table and did an awesome job!
Thanks to Lisa, Bekki and Aimee.


The Lanee Legacy crew: Kathryn, Heather, Becky, Erika and Rayel

We really appreciated Suzanne Helzer, Bereavment Coordinator at Banner Desert Hospital coming and speaking. One thing that stood out in her talk to me was when she thanked everyone from future parents who would receive a box. It really is EVERYONE who came, donated, volunteered and supported us that makes this all possible!
Lukas from Movin' 97.5 was so awesome!! He really kept things fun! LOVED him!

The next pictures are from our kids area. Bounce U provided our face painter and Twisty Kristy did an awesome job with the balloons. She couldn't tie those balloons fast enough. The octupuses were a HUGE hit with the kids. Thank you to Arizona Jump for discounting the jump systems.



Thanks to Kilee, Nicole, Amber and David for taking care of our balloon release.
That was a lot of balloons and butterlies to tie!
It was so sweet to see the kids write their personal messages to their loved ones and release them into the sky. I thought this pictures really captured the sweetness of it. These are actually my nephews (Braeden and Cole) and my own children (Garrett and Taryn).
Garrett doesn't quite know how to spell DeLanee's name yet. But still so sweet. The kids LOVED the fireman and firetruck. Thanks Queen Creek Fire Department!


Thursday, October 15, 2009

Pregnancy and Infant Loss Remembrance Day (giveaway)

First of all, I want to thank EVERYONE that showed their support by coming to our 1st annual pancake breakfast event and to everyone who volunteerd, donated and sponsored as well. It was a huge success and it would not have been possible without you! It was so wonderful to meet many of you that had wrote to us by e-mail and get to hear the stories of your sweet babies and feel the connection that has brought us together. It was such a great day.

We have already placed orders with our vendors for boxes and supplies and are very anxious to get started distributing them to hospitals and those that need them. As soon as we get the pictures back from our photographer we would love to share the highlights of the event with you.



Today, October 15th, has been proclaimed by the United States Congress as the National Pregnancy and Infant Loss Remembrance Day. It's sad that a day like this needs to exist, but I am glad that it does. Healing does come through remembering. If you would like to visit the website of National Pregnancy and Infant Loss Remembrance Day you can find it here.

Here, in Arizona, Banner Desert Medical Center has organized a "Walk to Remember" that coincides with the National Remembrance Day for parents to walk in memory of their babies. For those that are local and would like to participate in this event, it is this Saturday, October 17, 2009 at 9:00 a.m. at St. Timothy's Catholic Community Church located at 1730 W. Guadlaupe Road, Mesa, Arizona (between Dobson and Alma School).

I have done a little research myself concerning pregnancy/infant loss and wanted to share some of my findings:

- According to emedicine, in 2004, 2,246 deaths were certified as sudden infant death syndrome (SIDS), accounting for 8% of infant deaths. SIDS is the most common cause of death in infants aged 1 month to 1 year.

- Also according to emedicine, the overall miscarriage rate is reported as 15-20%, which means 15-20% of recognized pregnancies result in miscarriage. Note that these are just the "recognized" pregnancies. Recurring Misscarriage Syndrome (RMS) affects more than 500,000 women in the United States per year.

- In the United States, there is approximately one stillborn baby for every 115 live births, which is roughly 26,000 stillbirths each year.

- According to the March of Dimes, in 2002, about 19,000 babies died in their first month of life(called neonatal death).

Simply put, many, many people are affected by stillbirth, miscarriage and infant death each year. If you are one of these people, I want to tell you that your babies life counts! I want you to know I grieve with you - and not just today. When I began this project 6 years ago, it was to validate a life. DeLanee was not alive for very long, but it was very important to me that she was not forgotten and to know that her life counted. The box I was given and everything inside it did just that. . .validated her life. It is my hope that anyone who receives one of our boxes feels that same way. That their babies lives count. Because these precious babies that are sent to us for only a short time are significant. They touch us so deeply and profoundly in a way that we will never be the same.

In honor of October 15th, Lanee's Legacy would like to hold a giveaway. Heritage House '76 is a wonderful company that is known as the "precious feet people". They have donated necklaces to go into our boxes for quite some time now and are a company that Lanee's Legacy loves. The saying that we use on top of the boxes is one about feet and we also include a metal plaque that goes on top of the box that has baby feet on them. So, the necklaces fit very well into our bereavement boxes. They have graciously offered to donate this brooch for our giveaway. We will also give you one of their matching necklaces as well.

By leaving a comment and sharing your story you are automatically entered into this drawing which will end tomorrow October 16th at 10:00 p.m. Anyone is welcome to leave a comment whether you are the parent, grandparent, aunt, friend, sister, etc. You are certainly welcome to continue leaving a comment and sharing your story after this time as we would love to hear from you.

So, I will start. . .

My name is Becky. In January, 2004, we lost baby #2 to Dandy-Walker cyst at 28 weeks gestation. We met our precious daughter at 12:54 a.m. where we bathed, dressed and loved on her for 2.5 hours before she passed. We miss her everyday.

Friday, October 9, 2009

Silent Auction PREVIEW

We have had some really devoted and hard working friends and family who have spent lots of hours to ensure our silent auctioned items are a hit. They have put together some pretty amazing "themed" packages for you to bid on on Saturday.

All of our auctioned packages will start at a minimum bid of $50.00 except for our "camping/outdoor package" which will have a $200.00 minimum.

Here is a preview of what they are:

PLUM CUTE BABY
GIRL PACKAGE
VALUE: $160.00
Pillowcase Dress, Fabric Flower pin, Minky Blanket, Bib,
3 burp cloths, Taggie, Changing Pad, and Wipes Case.

PHOTOGRAPHY PACKAGE
VALUE: $380.00
Family Photo Session for 6 from Pied Piper Photography
Decorated Frame from Heidi Lynn @ Scrapbooks Etc.

RELAXATON/PAMPERING PACKAGE
VALUE: $340.00
Pedicure from Elite Nail, European Facial from Tantrum Salon, Massage from Linda Durney Cut and color from Blossom Salon, Gold Canyon Candle and Bed Head Products.

HOME IMPROVEMENT PACKAGE
VALUE: $520.00
(Must live in East Valley)
Pest Control, Carpet Cleaning, Home Depot Gift Card, Professional Housekeeping
Services by “Cynthia’s Cleaning,” 1 Month Free Pool cleaning by Aqua Pool Co., and
Black and Decker tool box.

GOLF PACKAGE
VALUE: $720.00
Two (2) nine hole punch passes good for 10 visits at Terra Grande Golf Club, Four ½ hour golf lessons from Michael Arrigoni at Western Skies Golf Course,
18 hole good for two at Las Colinas Golf Club, $20.00 gift card and custom golf club fitting from PGA Superstore, putter, head cover and golf puzzle from Joe’s Golf Shop.

FUN IN THE SUN PACKAGE
VALUE: $206.50
$25.00 Gift card to the Golden Spoon, up to 12 free children’s swim lessons from Carolyn Campbell-Westphal, free rounds of golf for six from Golfland, free punch pass to any Gilbert public pool after May 22, 2010 from Gilbert Aquatics, and beach buckets and towels.

CAMPING/OUTDOOR PACKAGE
VALUE: $250.00
Sportsman’s Gift Cards: $200.00
Dutch Oven

BIKE PACKAGE
VALUE: $60.00
20” blue Abyss children’s bike
* Band Aids
* Neosporin

GOURMET CATERED DINNER PACKAGE

VALUE: $500.00
Dinner for 10 from Arizona Party Wizards


So, don't forget your checkbook!!

Wednesday, October 7, 2009

. . .and the WINNER is!

Before I announce the winner of our contest, I just wanted to add a quick note here to tell you that anyone who has bought tickets to our pancake breakfast on Saturday through our paypal account, we will have your tickets available for pick-up at our "will call" table.

Thanks to everyone who participated in our "Night Out on Lanee's Legacy" contest that ended today at noon. It was a HUGE success and we were so lucky to get to fill our bucket quite full!

I didn't realize how much fun this was going to be!


Congraulations to Tyler Shelley! We will have your prize at the "will call" table and you can pick it up on Saturday morning. If you would like for us to get your prize to you another way, just let us know.

Now all you have to do is find a babysitter!

Tuesday, October 6, 2009

Announcements and Reminders

I have some big news! It's awesome news! I am so excited to tell you that each and every dollar that is donated at our upcoming fundraiser will go directly into the making of the boxes and donating them back to Banner Hospital because. . . .



WE ARE NON-PROFIT!!


Okay, well technically it's takes time to complete all the paperwork, but our needs that way are completely taken care of and we will be "official" in the very near future! Thanks to some very generous and tender-hearted men, we have both our legal and accounting needs taken care of and therefore freeing up any legal fees we would have paid towards becoming non-profit. I can't tell you how happy it makes me to know that all proceeds will go right back into helping grieving families. It's amazing! YEAH!
While keeping that in mind, I just wanted to remind you of a few things before Saturday. We still have our contest running right now where every $5.00 you spend enters your name into our drawing for a night out on Lanee's Legacy! Time runs out on Wednesday at noon to enter. Just use one of our paypal buttons to the right to play. As we've mentioned before, NOW is the best time to get your tickets for our breakfast because they'll double at the door!

Have I mentioned that we have over 70 raffle prizes included for Saturday's drawings? Your chances are great at winning some awesome prizes. Our silent auction is amazing as well, check back soon as I will be posting our "themed packages" available for bidding. They are truly great!

I am so excited and anticipating Saturday's event for many reasons. Knowing that all proceeds will directly benefit Banner hospitals as well as many grieving families is one of the reasons. But, Rayel, Erika, Heather, Kat and myself can't wait to meet so many of you that we have gotten to know recently and thank all of you for making this happen! You all are great!

. . .see you soon!